Welcome to the PWSA (UK) website
Welcome to the PWSA (UK) website
We are a registered charity (no. 284583), and the only organisation in the UK which is dedicated to supporting people with Prader-Willi syndrome (PWS),their families, carers, and the professionals who work with them.
Our vision: A world where PWS is not a barrier to a healthy and successful life.
Our mission: We exist to improve the lives of people with PWS and their families, carers and all who work with them. We champion their rights and provide information, training and support to all involved. We stimulate research into the management and alleviation of the disorder.
What is PWS?
Prader-Willi syndrome is a complex genetic disorder, which is present from birth. Its main characteristics are:
- excessive appetite
- low muscle tone
- emotional instability
- immature physical development
- learning disabilities (sometimes very mild)
On this site you will find information about PWS and how we can help. If you require in-depth information, please complete our free registration form to access other levels of the site.
- Guidelines for Care Quality Commissioners
- Family Weekend - Morecambe Bay - April 30th - May 3rd
- Our Way of Life - Special Event for Adults with PWS - June 19th
- Welcome to Jo Brand - our new Patron
- Online USA survey of children aged 5-19 with obsessive-compulsive symptoms
- Swine flu and people with PWS
- Mark Knopfler and Jo Brand help raise vital funds for PWSA (UK)
- PWSA (UK) Annual report 08-09
- PWSA (UK) Annual raffle and Christmas cards
- 2010 - 7th International Conference - Taiwan
- Discussion forum and community forum have merged
