All the latest news from the PWSA (UK)

CONFERENCES

8th International PWS Conference - 11th - 14th July 2013 - hosted by PWSA (UK)
Fitzwilliam College, Cambridge. If you are interested in receiving updates about the conference programme, please email jwaters@pwsa.co.uk stating what your involvement with PWS is (eg parent, person with PWS, residential care worker, doctor, dietitian etc) and the country you are living in.

EVENTS FOR FAMILIES AND PEOPLE WITH PWS

Livingston, West Lothian, Scotland - Sunday 12th September, The Almond Valley Heritage Trust, Millfield, Livingston, West Lothian EH54 7AR www.almondvalley.co.uk 10.30 - 4.00 pm.

Hove, West Sussex - Saturday 18th September, The Hangleton Community Centre, Harmsworth Crescent, Hove BN3 8BW. 1.30-4.30 pm

For further details of any of the above, email Maggie Rowley on mrowley@pwsa.co.uk for further information, or call 01332 365676

INTERNATIONAL

Wavelength
The latest edition of the International PWS Organisation newsletter, Wavelength, is available online at http://www.ipwso.org/wavelength-newsletters/

If you would like a printed copy of this, please send a large stamped self-addressed A4 envelope (make sure you use a Large stamp) to the PWSA (UK) office address on the inside page.

DVDs of the 7th International Conference (2010) now available
PWSA Taiwan recorded most of the presentations given at the four day 7th International PWS Conference held in Taipei May 2010. They donated the recording to IPWSO to allow parents and professionals who could not attend the conference to see the presentations and get updated information about PWS. The recordings, which are unedited, are divided into 3 different sections:
· Scientific Program (1 box with 5 DVDs)
· Caregivers Program (for residential care providers and others giving non-medical support to people with PWS) (1 box with 4 DVDs)
· General Program (mainly for parents) (1 box with 5 DVDs)
The discs are available on request from IPWSO. Preparing this material and mailing it all over the world has a cost, but IPWSO only request donations if people receiving them can afford and wish to contribute to the IPWSO mission. Donations can be made to IPWSO directly - make your cheque payable to "IPWSO" and send it with a note saying which DVDs you wish to receive to the address below.
Giorgio Fornasier, IPWSO Executive Director
via Villa, 45
32020 Limana
Italy
Email: g.fornas@alice.it

NEW PATRON 

We are delighted to announce that Jo Brand has agreed to become our new Patron and we extend a warm welcome to her from everyone at PWSA (UK).

Since leaving her job as a psychiatric nurse in 1987, Jo Brand has built a large following across the UK, male and female alike, appearing initially on the Saturday Live television show. In 1993 she became a resident panellist, along with Tony Hawks, on BBC monologue show The Brain Drain. Soon after, she had her hit “Through the Cakehole” (Channel X for Ch4) series met with great acclaim, as did her series “All the Way to Worcester” (Vera Prods for Ch4). Jo’s diverse appeal is marked by appearances on such eclectic programmes as “Question Time” (BBC) to “Nevermind the Buzzcocks” (TalkBack Prods for BBC) and “Countdown” (YTV for Ch4) to “They Think It’s All Over” (TalkBack Prods for BBC) and The Graham Norton Show (BBC).

Jo took part in the first celebrity version of Comic Relief does Fame Academy, and then in 2007, she appeared as a celebrity contestant on Comic Relief Does The Apprentice, again to raise money for Comic Relief. In 2009 she participated in Let’s Dance for Comic Relief, another Comic Relief fundraiser, dancing as Britney Spears (‘tis true), reaching the final.

She appeared as a judge in the BBC2 series The Speaker in April 2009. She offered her advice, along with John Amaechi and Jeremy Stockwell, in the eight-part series charting the search for “Britain’s Best Young Speaker’‘. This year saw her write and star in the utterly marvellous, Getting On, in which she starred along co-writers Joanna Scanlan and Vicki Pepperdine, on BBC in July 2009. The series, set on a hospital’s geriatric ward, was partly inspired by her earlier career in nursing, and has been commisioned for a second series to begin filming in 2010.

Her autobiography ‘Look Back In Hunger’ is now available from all good stockists. For further details see www.vivienneclore.com

RECENT GRANT AWARDS
Society for Endocrinology   We are very grateful to the Society for Endocrinology for a grant to update our main information leaflet.

 PWSA (UK) Annual Report
Our latest annual report for 08-09 is available to view here