More about PWS

PWS is a very complex condition, which has several health, social and educational implications. In this section of the website, you can access information about various aspects of the syndrome in greater depth.

Health care, including high pain threshold, bone fractures, bruising, vomiting/abdominal pain, food foraging, excessive fluid intake, temperature, obesity-related problems, respiratory problems/obstructive sleep apnoea, skin lesions/cellulitis, anaesthesia, infant-specific issues, mental health problems.

Endocrine Disorders relating to PWS, which include:  hyperphagia, growth (and growth hormone therapy), body composition, sleep apnoea, sex hormone deficiency, diabetes, hypothyroidism.

Behaviour Management including:  temper outbursts, food seeking and/or stealing, stubbornness, resistence to change, argumentativeness, repeating questions and topics, obsessive-compulsive behaviour, attention seeking and manipulative behaviour, skin picking and spot picking, lying and blame shifting, use of medication in severely challenging behaviour and mental health problems. 

Educating the Child with PWS including classroom management, mainstream vs special schools.