For Parents

This section is specially for parents.  There are separate web pages for different ages which will give links to the most relevant parts of the website for the age of your child.  These age ranges are:

• 0-2 years
• 3-5 years
• 6-11 years
• 12-19 years
• Adults

If this is your first visit to our website, we suggest that you visit these pages first. Because we want to provide as much information as possible about PWS, you may find yourself thinking that everything about PWS is negative. This is not so. On our parents' pages and links you will find suggestions on managing the syndrome and much to make you feel more positive about the future.

IMPORTANT! Registering on this website does NOT automatically make you a member of the PWSA (UK). To find out more about membership click here.

If you wish to offer or seek contact with other parents, please click here.

Parent/Carer Volunteer Network
Our network of volunteer parents, carers and other relatives who are willing to offer telephone support to other parents and carers about their experience of living with PWS is now up and running in England (with funding from the Department of Health) and Scotland and Wales (with funding from The Big Lottery Fund). The range of topics on which volunteers are willing to share ideas and experience is very large, and includes: growth hormone, scoliosis, new diagnosis, residential care, education, etc. If you would like to talk to another parent about any issue, please contact us.

PWS Community Blog Site
A community blogsite moderated by a PWSA (UK) member, which gives people the opportunity to share blogs about their experience of living with PWS. To go to the site click here

The Parent +
This website has been written by professionals from The Dyscovery Centre based at the University of Wales, Newport, and aims to provide practical advice for those supporting children as they grow up and to provide practical guidance.

The team at The Dyscovery Centre are health and educational professionals and have extensive experience of working with children and young people with a range of specific learning difficulties. However many approaches for children with additional learning needs can be suitable for all children.