For Family and Friends
PWS affects everybody in the family and it is very helpful if everyone understands what is involved in managing the syndrome. Friends and neighbours also have a positive part to play.
This part of the website is specially for family members such as brothers and sisters, grandparents and others who have daily contact with someone with PWS.
Grandparents
Other useful resources on this website:
Membership of the PWSA (UK) Details of the benefits of joining the Association
About us More about our how we can help and details of our staff team.
What is PWS? A synopsis of the syndrome which can be useful to give to people who are unaware of the condition.
The genetics of PWS In the vast majority of cases, PWS is not hereditary and does not run in families. However, in about 5% of cases, there is a chance of PWS recurring. If you have any doubts or worries about this, please ask your GP or other consultant for a referral to a geneticist.Weight management A brief description about why weight management is so crucial in PWS.
Behaviour management in PWS
Discussion forum
PWS Community Blog Site
A community blogsite moderated by a PWSA (UK) member, which gives people the opportunity to share blogs about their experience of living with PWS. To go to the site click here
Other PWSA (UK) publications:
Healthy Eating with Prader-Willi Syndrome
Our Babies and Children
FOR MORE DETAILS OF OUR PUBLICATIONS AND ORDER FORM, CLICK HERE
FOR LATEST NEWS AND EVENTS CLICK HERE