Welcome to the PWSA (UK) website

Welcome to the PWSA (UK) website
We are a registered charity (no. 284583), and the only organisation in the UK which is dedicated to supporting people with Prader-Willi syndrome (PWS),their families, carers, and the professionals who work with them.

Prader-Willi syndrome is a complex genetic disorder, which is present from birth. Its main characteristics are:

• excessive appetite
• low muscle tone
• emotional instability
• immature physical development
• learning disabilities (sometimes very mild)
  

On this site you will find information about PWS and how we can help. If you require in-depth information, please complete our free registration form to access other levels of the site.

• Family Days Out this Summer in England
• SENAD Communication training workshop for professionals, parents and carers
• Volunteers with Uniparent Disomy (UPD) required urgently for research
• Parents and carers of people with PWS aged 40+ required for research interviews
• Online survey about parenting a child with a disability
• Healthy Eating and PWS - New Publication
• The Mental Capacity Act and its significance for the support of people with PWS
• PWSA (UK) Community Blogsite
  
  Our grateful thanks to the following for their support for this website:
  HSA Charitable Trust; Society for Endocrinology; The Warren Concert Party; Derbyshire Chamber & Business Link; In memory of David Laird-Bisset