Welcome to the PWSA (UK) website

Welcome to the PWSA (UK) website
We are a registered charity (no. 284583), and the only organisation in the UK which is dedicated to supporting people with Prader-Willi syndrome (PWS),their families, carers, and the professionals who work with them.

Prader-Willi syndrome is a complex genetic disorder, which is present from birth. Its main characteristics are:

  • excessive appetite
  • low muscle tone
  • emotional instability
  • immature physical development
  • learning disabilities (sometimes very mild)

On this site you will find information about PWS and how we can help. If you require in-depth information, please complete our free registration form to access other levels of the site.