Welcome ...

To the PWSA UK website, which has been designed to meet your information and resource needs about Prader-Willi Syndrome and the Prader-Willi Syndrome Association UK - whether you are someone with PWS, a parent, professional, academic, journalist, politician, or just want to know more - this site is for you.

Prader-Willi syndrome (PWS)

Prader-Willi syndrome is a rare, complex genetic disorder, which is present from birth and continues throughout life. In 95% of cases it is not hereditary and can thus occur in any family. People with PWS are challenged by an untreatable, insatiable appetite resulting in almost constant feelings of hunger, together with immature physical and emotional development. Most have learning disabilities.

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Who are we?

PWSA UK is a registered charity (No. 284583) which has been operating for over 30 years and is the only organisation in the UK that is dedicated solely to supporting people with Prader-Willi syndrome (PWS), their families, carers and professionals, in managing the impact of PWS, promoting transformational interventions, supporting positive, healthy lifestyles as well as more fulfilling life chances, enhancing quality of life and maximising the opportunity to fulfil potential.

We receive no government funding and rely entirely on the generous donations and fundraising activities of our supporters to raise £500,000 every year to support our work.

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We have a wide range of publications about Prader-Willi Syndrome, some of which are free and downloadable from this website. Others are available for sale.  To see our full list, click here.


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