Become a Member Today
The PWSA UK is a membership-based organisation, placing our members at the very heart of everything we do. By becoming a member, you join a supportive community where your unique experiences with Prader-Willi syndrome help shape our vision, initiatives, and impact.
Who Can Join?
Our membership is open to anyone aged 16+ who shares our mission.
This includes:
- Individuals with Prader-Willi syndrome
- Parents and carers
- Professionals and advocates
Why Join PWSA UK?
Becoming a member offers a range of benefits:
- Community Connection: Meet others through events and our online forums, sharing knowledge and experiences.
- Exclusive Updates: Stay informed with our members' magazine, featuring news, resources, and insights.
- Have Your Voice Heard: Share your perspectives to guide our strategies and priorities.
- Active Participation: Join the Annual General Meeting (AGM), vote for trustees, and play a role in our mission.
Membership is completely free, with no ongoing commitment or expiry.

Join a community that has been supporting individuals with Prader-Willi syndrome for over 40 years. Together, we can overcome the challenges of life with PWS.
Join now
Thank you for completing our GDPR and Membership form. We will update our records accordingly and if you have agreed to our contact, will be in touch in 5 years to re-authorise your consent.
Please contact admin@pwsa.co.uk if you need to change any details or contact preferences before this.
Please try again later.
What is GDPR?
The General Data Protection Regulations (GDPR) require us to ensure that any information that we have about you is held correctly so that we can continue being in contact with you. We don’t pass any of your details on to anybody else and we only use personal details to improve our support services. It also means if you call us again, we will have your details to hand.