Become a Member Today

The PWSA UK is a membership-based organisation, placing our members at the very heart of everything we do. By becoming a member, you join a supportive community where your unique experiences with Prader-Willi syndrome help shape our vision, initiatives, and impact.

Who Can Join?

Our membership is open to anyone aged 16+ who shares our mission.

This includes:

  • Individuals with Prader-Willi syndrome
  • Parents and carers
  • Professionals and advocates

Why Join PWSA UK?

Becoming a member offers a range of benefits:

  • Community Connection: Meet others through events and our online forums, sharing knowledge and experiences.
  • Exclusive Updates: Stay informed with our members' magazine, featuring news, resources, and insights.
  • Have Your Voice Heard: Share your perspectives to guide our strategies and priorities.
  • Active Participation: Join the Annual General Meeting (AGM), vote for trustees, and play a role in our mission.


Membership is completely free, with no ongoing commitment or expiry.

Join a community that has been supporting individuals with Prader-Willi syndrome for over 40 years. Together, we can overcome the challenges of life with PWS.

Join now

Please complete a new form for each person wanting to become a member. You will receive an email confirming your submission.


If you do not want to become a member but would still like to receive infromation please email admin@pwsa.co.uk


By completing the membership form, you consent to PWSA UK holding your personal data and contacting you regarding the information you have consented to, in accordance with current GDPR requirements. More information about GDPR can be found at the bottom of this page.

The following questions on gender and ethnicity are optional, but answering them will help ensure that we can reach all members of our PWS community across the UK.

Ethnicity (please choose from the dropdown menus):

 Are you happy for us to send information about any of the following (if you DON'T want any information to be sent then please select the last option): 

If you are a parent/carer/professional and become a member you will receive our quarterly magazine PWS News via email.

If you are 16 or over with PWS complete the section labelled 'Adults with PWS' for your magazine, Wise Owl Feathers.


The amount of mailings you will receive will be similar to what you are already getting, it is just so we can send you items you are interested in.   

Contact Method  

Are you happy for us to contact you via:

Email
Post
Telephone

Please note all our information will be sent via e-mail where possible due to being paperless and being more cost effective – please contact us if you do not have an active e-mail yet would still like to receive information. 

Adults with PWS

If you are aged 16 years or older you can become a member and receive the quarterly magazine, Wise Owl Feathers written by adults with PWS for Adults with PWS. Wise Owl Feathers is available via post or email, please choose how you would like to receive your magazine. 

We also run monthly zoom nights consisting of bingo, quizzes and other fun stuff. Would you like to hear about these? 

(requires an email address)

What is GDPR?

The General Data Protection Regulations (GDPR) require us to ensure that any information that we have about you is held correctly so that we can continue being in contact with you. We don’t pass any of your details on to anybody else and we only use personal details to improve our support services. It also means if you call us again, we will have your details to hand.

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