Events

Welcome to our events page, which is regularly updated as new events are confirmed throughout the year.

Take a look at the events already scheduled for the year and get more information by registering your interest below.

Planning a fundraising event? Let Karen know by emailing kwilkinson@pwsa.co.uk or calling 01332 365676.

Register Your Interest

If the event you’re looking for isn’t listed, it’s likely not yet confirmed. Why not join us as a free member to receive email updates about our events?

March

25 - Northern Ireland Connect.  We are hosting two online sessions to bring together our Northern Ireland PWS community.  Session 1: 11 AM – 12 PM

Session 2: 7 PM – 8 PM

Both sessions will cover the same topics, so you can choose the time that works best for you.


April

3 - P2P 16+ yrs. Join our online support group for parents of children aged 16+. Our virtual meetings provide a safe, friendly, and informal space for parents to connect and discuss all aspects of PWS. The topic for this session is medical issues. 


5 - Fundraising Event: Snowdon at Sunrise. Join us for an unforgettable fundraising challenge! Setting off at midnight, we’ll tackle the Llanberis Path to reach Snowdons peak in time to watch the sunrise. 


25-28 - PWS Community Weekend at Seton Sands Holiday Village, Scotland. Please note that you will need to book and pay for your accommodation separately through the resort. The link can be found on the Eventbrite page, which will be sent to you once you register your interest.


27- TCS London Marathon. Our 2025 runners are already deep into their training plans. However, you can register your interest for the 2026 marathon—or even 2027! We'd love to support you in taking part in one of the world’s most famous marathons.

May

Awareness Month 

Stay tuned for Awareness Month as we have some exciting plans..


8 -  P2P mUPD. Led by volunteer Wendy Davey, a mother of a son with maternal uniparental disomy, these sessions provide a supportive space for parents to share experiences. Each session is topic-based, with the first set by volunteers and future ones chosen by the group.


16-19  - PWS Community Weekend at Ty Mawr Resort North Wales. Please note that you will need to book and pay for your accommodation separately through the resort. The link can be found on the Eventbrite page, which will be sent to you once you register your interest.


22 - P2P Group 5-15yrs. Join our online support group for parents of children aged 5-15. Our virtual meetings provide a safe, friendly, and informal space for parents to connect and discuss all aspects of PWS.


30- Awareness Day. The last friday in May is PWS Awarenss Day, spread awareness using #GoOrangeForPWS

June

4 - P2P Group for Dads. Our online support group for dads offers a safe, friendly, and informal space to share experiences, ask questions, and support one another.


12 - P2P 1-5yrs. Join our online support group for parents of children aged 1-5 years. Our virtual meetings provide a safe, friendly, and informal space for parents to connect and discuss all aspects of PWS.



July

3 - P2P 16+ yrs. Join our online support group for parents of children aged 16+. Our virtual meetings provide a safe, friendly, and informal space for parents to connect and discuss all aspects of PWS.


6  - Fundraising Event: Parallel Windsor. This all-inclusive fundraising event is one not to miss. Walk, run, or wheel your way to the finish line in the stunning Windsor Great Park. 

August

21 - P2P Group 5-15yrs. Join our online support group for parents of children aged 5-15. Our virtual meetings provide a safe, friendly, and informal space for parents to connect and discuss all aspects of PWS.

September

7  - Fundraising Event: The Great North Run. Take part in the UK’s most iconic half marathon! We have just four spaces reserved for this event. 


11 - P2P 1-5yrs. Join our online support group for parents of children aged 1-5 years. Our virtual meetings provide a safe, friendly, and informal space for parents to connect and discuss all aspects of PWS.


19-22  - PWS Community Weekend at Camber Sands East Sussex. Please note that you will need to book and pay for your accommodation separately through the resort. The link can be found on the Eventbrite page, which will be sent to you once you register your interest.


27  - Fundraising Event: Abseil Down the National Express Lift Tower.  Registration for this thrilling event will close soon, so don’t miss your chance to take part.  

October

2 - P2P 16+ yrs. Join our online support group for parents of children aged 16+. Our virtual meetings provide a safe, friendly, and informal space for parents to connect and discuss all aspects of PWS.

November

27 - P2P Group 5-15yrs. Join our online support group for parents of children aged 5-15. Our virtual meetings provide a safe, friendly, and informal space for parents to connect and discuss all aspects of PWS.

December

4 - P2P 1-5yrs. Join our online support group for parents of children aged 1-5 years. Our virtual meetings provide a safe, friendly, and informal space for parents to connect and discuss all aspects of PWS.

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