We are proud to be a member of IPWSO (International Prader-Willi Syndrome Organisation), an international parent-led, non-profit, membership organisation with contacts in more than 120 countrues. IPWSO supports national Prader-Willi syndrome associations, as well as people with PWS, their families and the professionals who work with them. As an international umbrella organisation, IPWSO brings together the national Prader-Willi associations, and for countries where there are no formal associations, it supports medical and parent delegates as part of the global community.

Find out more about IPWSO here.

We are a proud member of the Disabled Children’s Partnership (DCP) – a growing coalition of more than 90 organisations – campaigning for improved health and social care for disabled children, young people and their families in England.

We know that 43% of the British public don’t know anyone who is disabled and that 97% of parents with a disabled child do not believe the public understands the challenges they face every day.

The DCP’s Secret Life Of Us – developed in close partnership with parents – reveals the parts of their lives that most people simply do not see – bringing to life the realities of the challenges disabled children, young people and their families face when living a life many of us take for granted. The Secret Life of Us aims open the eyes of the public to the difficulties faced by families on a day-to-day basis, removing the barriers to people being able to relate to the lives of disabled children. 

Find out more about the DCP here.

We are a proud member of the Genetic Alliance UK, an alliance of more than 200 charities and support groups working together to improve the lives of people in the UK with genetic, rare and undiagnosed conditions.

Find out more here.

PWSA UK is affiliated with Society for Endocrinology, an organisation that supports clinicians, scientists and nurses who work with hormones throughout their careers. They engage policy-makers, journalists, patients and the public with hormone science to encourage informed health decisions, and to demonstrate the value of endocrinology to the wider world and also maintains a public information website, You and Your Hormones.