Financial help
Life with a family member with PWS can often mean additional expenses for the household, and any additional financial help that can be obtained can be useful. Although a diagnosis of PWS doesn’t automatically entitle families to financial support there are some allowances that can be applied for. A family's circumstances will be considered on a case by case basis, against the set criteria in each situation.
Sources of Financial Support
Applications can be long, take significant time and can be a challenge to complete. However, our leaflet, Government Allowances and Sources of Financial Help, contains guidance to help you, and we can provide advice and/or a letter to support your application, if required.
- Disability Living Allowance and other sources of funding and help (PDF)
- Personal Independence Payments (PIP) (PDF)
Government Initiatives
- Disability Living Allowance (DLA) – 3months to 15 years old – made up from 2 components, the ‘care component’ and the ‘mobility component’ and to get DLA you must be eligible for at least one component -
www.gov.uk/dla-disability-living-allowance-benefit
- Personal Independence Payment (PIP) – from 16 years onwards – potential help with costs if you have a long term ill-health or disability
UK and Wales: www.gov.uk/pip
Scotland: www.mygov.scot/adult-disability-payment
Northern Ireland:
www.nidirect.gov.uk/articles/personal-independence-payment-pip
- Carers allowance – potential payments if you care for someone at least 35 hours a week and they receive certain benefits -
www.gov.uk/carers-allowance
- Universal Credit (UC) – potential payments to help with living costs if you are on a low income or out of work -
www.gov.uk/universal-credit
- Council Tax reduction – potential reductions if you’re on a low income or claim benefits - www.gov.uk/apply-council-tax-reduction
Support to find and access grants
We have compiled a downloadable list of organisations that can help you access funding, as well as those who can also provide grants themselves, including to help with equipment, holidays, housing and days out.
CONTACT
Postal correspondence address:
Prader-Willi Syndrome Association UK
C/O Metcalf’s Commercial Decorators
3 Deer Park Road
Moulton Park
Northampton
NN3 6RX
Phone: +44 (0)1332 365676
Email: admin@pwsa.co.uk
Registered Charity number
England and Wales: 1155846 Scotland: SC053700
