Professionals you should see

Children and young people with PWS require multi-professional advice and oversight from infancy onwards. This should be provided by local services, and there are a number of specialist PWS clinics.


The current specialist Paediatric PWS clinics in the UK are:


  • The Royal Alexandra Hospital, Brighton
  • Birmingham Children’s Hospital, Birmingham
  • Chelsea and Westminster Hospital, London
  • The Royal London Hospital, London
  • The Royal Stoke University Hospital, Stoke-on-Trent
  • Queen Elizabeth University Hospital, Glasgow
  • Royal Hospital for Sick Children, Edinburgh


You can be referred to these by speaking to your GP, and we can provide a letter of support should it be needed.

Professionals you should see once you have received a diagnosis are:


  • Hospital Paediatrician—general overview and referral to other services
  • Endocrine Paediatrician—advice on hormones and PWS
  • Consultant Community Paediatrician—to oversee local services
  • Paediatric dietitian—dietary advice
  • Child Development team—general development and support
  • Physiotherapist– for muscle tone and core strength
  • Speech and language therapist
  • Occupational therapist
  • Social worker from Children with Disabilities team


We know this list looks overwhelming - you do not need to see all of these professionals all of the time. They should, in time, form a network of support around you to help you through your journey.

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