A message to our community from our CEO

I joined the Association just over 10 years ago in our 30th Anniversary year and it is wonderful to still be here in our 40th Anniversary year.

However - isn’t there always a however - as all things do eventually change, it is now well past time for me to retire and move aside for someone new to lead this amazingly fantastic organisation.

I will be leaving PWSA UK at the end of December this year but although I will no longer be CEO, I am planning to stay very connected to the PWS community and I hope to continue to support the Association in other ways.

The search for a new CEO will start this month and we are determined to find someone who can ably lead our team and also has a strong belief in the potential and value of people with Prader-Willi syndrome.

In the 10 years that I have been with the Association I have brought in many changes and those changes have enabled us to grow into an amazing Association with a great team. I am sure that the new CEO will also bring in changes and they will help the Association to grow even more, to expand our services and to provide even better support to our PWS community.

I think that this is an exciting opportunity for the community and for the Association,



Susan Passmore

CEO, PWSA UK