PWSA UK is 40!

Note: this article has been edited to reflect the fact that our annual conference has been moved from October 2022 to March 2023.



As you may have heard, PWSA UK turns 40 this year. That means we’ve been supporting our amazing community for four whole decades!

It’s been an absolutely incredible journey and we’re looking forward to celebrating with as many of you as possible throughout the year, whether at one of our family weekends, family days or one of the many fundraising events we are involved in – and, of course, there is our national conference, which takes place in March 2023.

You can find out what we’ve got coming up throughout 2022 here.

We’d also still love to hear YOUR ideas for ways to celebrate this milestone birthday, so don’t forget to let us know by emailing admin@pwsa.co.uk.

And if you’ve got any particular memories you’d like to share from the last 40 years, either about PWSA UK or the wider experience of life with PWS, then we’d love to hear them. Email them to jhorsfall@pwsa.co.uk so that we can share them across our platforms, including our website, social media and magazines.

Also, don’t forget that our Grand Annual Raffle is back for 2022 with lots of fantastic prizes to be announced. The draw will take place at our conference. Find out more here.

Stay tuned for further 40^th anniversary announcements very soon – keep an eye on our website and social media channels!